Tuesday, August 25, 2009

Aug 25th update - Alexa's big day!

Hi all,
We have 3 updates:
1) Kourtney is back from Camp Casey soccer camp and said she had a good time with her friends and played a ton of soccer!
2) My mole removal, 2 weeks ago, took Dr. Byrd about 2 hours and I have 4 more scars to prove now that I am completely free of melanoma. This round of GM-CSF shots will be over on Friday, then I take 2 weeks off and go for one more round for 2 weeks.
3) Alexa had her surgery today and it all went very well, Grammie, Doug and I were there with her. She wanted to "sleep" during it, so she wouldn't feel any pain, and it worked. We checked into Virginia Mason at 7:20am, moved into the prep. room around 8am and she was changed and ready to get wheeled into the operating room with Ruf Ruf and Ruf Ruf (2.0) in hand around 8:30am. Her plastic surgeon, Dr. Alexandra Schmedik, was very personable and showed her a picture of her "real" dogs :-) I was able to go into the operating room with her until she fell asleep. Once in the room, they quickly administered "laughing gas"... and much to my surprise, she giggled into a nice slumber... she said the last thing she heard was me say "I thought laughing gas was just what they called it" then she said it echoed over and over in her head, along with the nurse saying "keep breathing", and that was it, she felt all tingley and was out. The surgery went from about 8:30-9:00 and then we were visited by Dr. Schmedik with the news that it went very well and her instructions of no soccer for 2 weeks, since they did internal stitches and don't want to risk them getting hit by a ball or cleat. I think she decided to say "2 weeks of rest from soccer" specifically instead of 1 week due to the nice bruise Alexa has on her shin from the soccer tournament in Portland this weekend ;-). After seeing this photo showing her surgery area and bruise, her soccer coach texted, "Hmmm which one will she more proud of....? :)" Alexa says "both". We are now at home resting, watching tv and movies.
We plan on being DONE with hospitals for good now since these last 8 months have given us enough experience with them and because we all have been given a clean bill of health, finally! Also done are soccer tournaments and summer vacations so we look forward to the nice routine of school and fall soccer that is just around the corner.

Thanks for all your support and we will update the blog sometime in September.

~Keri, Doug, Kourtney & Alexa

PS An early "Welcome to the World" to Zoe Hill (Tom and Stefanie Hill's new little one) - Stefanie is in labor at the hospital as I type and we wish them and Zoe's big sister, Hanely, all the best!




Friday, August 7, 2009

August update

Hi all,

After waiting to get the new drug ipilimumab in Sept., come to find out, I don't qualify for the 2 trials about to begin at the SCCA: one trial is for patients with measurable disease (which I don't have, yipee!) and the other trial is for patients who are Stage III (which I am not) and hasn't had treatment, (which I 've had - IL2). So I will have to wait until it is officially approved by the FDA...which could be another year or so while they complete those last 2 trials. I will start my 4th round (2 weeks) of GM-CSF shots on Friday, Aug. 14th and then take 2 weeks off, then my 5th round on Friday, Sept. 11th.

Next, I am going in on Tuesday, Aug. 11th to remove the 4-5 areas that are either extremely atypical, non-invasive melanoma or invasive melanoma. It will be an in-clinic, out-patient procedure at the SCCA (Seattle Cancer Care Alliance) by Dr. Byrd and he thinks it will just take a hour and a half.

Kourtney has a soccer tournament in Snohomish, Aug 13-16, then she is going to Camp Casey in Whidbey Island Aug. 16-21 for soccer camp with a few of her teammates. Alexa has a soccer tournament in Portland, Oregon, Aug. 20th-23rd and we look forward to seeing my cousin Todd who just returned from Iraq after being there for 6 months :-) Glad he is home safe!

Then, Alexa is going into Virginia Mason on Tuesday, Aug. 25th to have her moderately atypical mole removed, but she will be asleep for that procedure. And after the trips to the ER and multiple attempts to insert an IV, and the havoc that created with her and on my nerves, I completely agree with that decision - the less pain she feels, the better for the both of us!!

School starts for the girls on Wed., Sept 2nd - Kourtney will be an 8th grader and Alexa a 5th grader. Crazy how the summer just flew by, what happened?!

Thanks for all your support! We will update the blog at the end of the month.

-Keri
PS Doug and I went to the Kenny Chesney concert, or as I like to say...the Sugarland concert, to celebrate our 15th anniversary - fun times!